• General Links

European Commission (EC)
https://ec.europa.eu

Orphanet
www.orpha.net

CNR-MAT: Centre de référence des microangiopathies thrombotiques
www.cnr-mat.fr

European Medicines Agency (EMA)
www.ema.europa.eu
Medicines for Rare Diseases (EMA)

Food and Drug Administration (FDA)
www.fda.com
www.fda.org
Developing Products for Rare Diseases and Conditions (FDA)

International Conference on Harmonisation (ICH)
www.ich.org

European Federation of Pharmaceutical Industries and Associations
www.efpia.eu

Innovative Medicines Innitiative
www.imi.europa.eu

SafeSciMet
www.safescimet.eu

IMI-TRAIN
www.imi-train.eu

on-course
www.on-course.eu

LifeTrain
www.lifetrain.eu

  • Researchers

International Society on Thrombosis and Haemostasis (ISTH)
www.isth.org

European Association of Hematology (EHA)
www.ehaweb.org

American Society of Hematology (ASH)
www.hematology.org

Belgian Society on Thrombosis and Haemostasis (BSTH)
www.bsth.be

Dutch Society of Hematology
www.hematologienederland.nl

Spanish Society of Hematology and Hemotherapy
www.sehh.es

Czech Society of Hematology
www.hematology.cz

Danish Society of Hematology
www.hematology.dk

Italian Society of Hematology
http://www.siematologia.it/

Dutch Society for Thrombosis and Hemostasis
www.nvth.nl

British Society for Haemostasis & Thrombosis
www.bsht.org.uk

Japanese Society of Hematology (JSH)
www.jshem.jp

The Canadian Hematology Society
www.canadianhematologysociety.org

  • Patients

Rare Diseases International
www.rarediseasesinternational.org

EURORDIS – The voice of Rare Disease Patients in Europe
www.eurordis.org

Hematoslife
www.hematoslife.org

Answering TTP
www.answeringttp.org

TTP Network
www.ttpnetwork.org.uk

Oklahoma University TTP-HUS registry
http://ouhsc.edu/platelets/ttp.html

Bloodline
www.bloodline.net

ClotCare
www.clotcare.org

 

Funded by the Horizon 2020
Framework Programme of the
European Union